Today’s the day to remember that was me

So, there have been moments lately where I have read about a mom who lost her child and think “that is so unimaginable”. Or hear about a child who has been in the hospital for a prolonged period of time and say to myself “that poor baby, and his poor parents”.

But then I remember, that was me. That is me. My husband and I are those parents.

It’s a seriously surreal feeling. It’s a completely different world I once lived in. I can’t say that I’m too sure I was actually fully present during that time in my life. I was so focused on taking care of Quinlan that I’m not sure I actually soaked it all in (nor do I believe it’s humanly possible to do so in such a traumatic situation). I was so concentrated on learning all I could from the doctors, nurses and therapists in order for Quinlan to survive. Hearing about these families going through the same thing as we went through sometimes seems so foreign to me, while also seems so incredibly familiar. I could see a child laying in an ICU bed space and know (or at least have an idea) what that tube is for, what those machines do, and how he or she is doing based on the numbers on the monitors. I could still hear the alarm and automatically jump up to check what their numbers show. I still know the fear the parents feel every moment. Maybe this feeling of disconnect is my body’s way of protecting myself because if I truly did feel it all, all the time, I would not be able to continue on and live the rest of my life.

I recently realized that August is the same age now that Quinlan was when he was finally diagnosed with having the Brat1 mutation. These last 15 months with August have gone by so fast, it’s almost impossible to think that in this same exact time frame, we went through all we did with Q. Again, such a different world that was.

When Quinlan was August’s age, he had spent 300 days admitted to the hospital. August has spent zero.

Three years ago this weekend, Bear and I spent two nights away at a hotel in Kennebunkport to “get away” from the fact that our two year old son had just passed away (there’s no getting away from that, as you know or can imagine). This weekend was spent chasing after August at the playground and watching him giggle as he went down the slide.

Could these two weekends be any different? It’s like two different peoples lives.

And saying all this now brings on the guilt. The guilt of wondering if I was a different mom to Quinlan than I am now to August. Does feeling as though that life is so foreign take away all that we went through? Am I more or less a mom to one over the other because these journeys have been so incredibly different?

I feel like I’ve lived such an out-of-body experience, yet that same experience has changed me, so how out-of-body could it really have been?

That was me then and this is me now. I’m still working on introducing them to each other.

💚Mama Bear

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